Monthly Archives: June 2015

CHARGE syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast … Continue reading

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What to do on father’s day?????

As father’s day approaches in some countries  ( http://www.fathersdaycelebration.com/fathers-day-date.html) many will be making plans to celebrate with their families and other loved ones whilst a group of other fathers will be anxiously anticipating it. For many men who have lost a … Continue reading

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Battens Disease awareness. Michell

Originally posted on daddyswithangels:
Dead, died, death words that fill a persons soul with absolute mind numbing fear! When I heard those words for the very first time regarding my daughter I suddenly became deaf… The room was full of…

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Batten disease. let’s cure it!

Originally posted on daddyswithangels:
Imagine waking up one morning and finding your eyesight failing. Imagine waking up and stumbling when you walk. Imagine opening you mouth and not being able to talk. Imagine not understanding, being incontinent, and being unable…

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Antiphospholipid syndrome (APS)

Antiphospholipid syndrome (APS) is sometimes known as ‘sticky blood syndrome’ or Hughes syndrome. APS can cause blood clotting in your arteries or veins and is a major cause of recurrent miscarriage. It’s also one of the most common causes of … Continue reading

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Twin Reversed Arterial Perfusion Sequence (TRAP Sequence)

Twin reversed arterial perfusion sequence (TRAP sequence) occurs when one twin, lacking a functioning cardiac system, receives blood from the normally developing “pump twin” in a monochorionic pregnancy. This places an enormous demand on the heart, putting the pump twin … Continue reading

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Postpartum depression

Originally posted on daddyswithangels:
PLEASE NOTE THIS INFORMATION HAS BEEN SOURCED FROM THE MAYO CLINIC AND AS SUCH ALL OF THE INFORMATION MAY NOT BE RELEVANT IN ALL COUNTRIES. Definition The birth of a baby can trigger a jumble of…

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